This blog was set up to follow my family's journey in the NSW education system. As we found our feet on that journey it has become a bit of a neglected garden. As my own children prepare to move onto High School in the near future and my own career in special education develops I hope that this blog continues to chronicle our journey
Friday, July 10, 2009
Our Science Experiment
Han's IQ assessment finally arrived. It didn't tell us anything new - in fact the report of her actual assessment performance was less detailed than the verbal summary the spychologist gave us initally - because the typed one didn't include feedback on the individual subtests within the Wiipsi. The 'scool of choice' rang - just to ask for a release of information form. So one step closer but still waiting...
In the meantime there was a cancellation at the sleep clinic so I took Han in for a sleep study - it is good to have another - 'before she goes to school' medical appointment crossed off the 'todo' list. She was a very good girl - patient with all the wires and cooperative with the staff. There was one registrar who sort of raced into our room and immediately started looking for her simeon crease and brushfield spots - not that all kids with DS have them (and Han doens't have a definite SImeon crease)! Anyways she made a comment that I was 'a knowledgeable Mum' when I showed Hannah's hand creases to her - she was looking at her own hand and amazed that Han's handcreases looked the same as her own - I wanted to say a lot of things to her about her doctoring and patient skills - but I bit my tongue - just said that yep - regular people can also have a simeon crease. We haven't got the results yet.
Subscribe to:
Post Comments (Atom)
The testing process can be difficult!! Hope all goes well.
ReplyDeleteThanks for posting a question on my blog... I will put it on my to-do list for the end of this month.
So we all need to have our kids tested before they start school? I don’t think the other families here needed to. Hmm
ReplyDeleteHow do you get the Doctor to give you a referral for a sleep study? Our GP and Pead just wont. Though after the T&A were removed he sleeps pretty well. Thank goodness they cant grow back, I’s hate to ever go through those nights again.
Hope the sleep study results aren’t too long. And they are good news
Cathy - we don't 'have to get it done before school' as a matter of course but tha tis how my pediatrician sold it to us - becuase if she isn't sleeping well she won't have maximum energy to cope at school. My husband is very loath to have her undergo any testing that may result in surgery so it always takes us a lot of time for things like this where the problem doesn't seem very obvious or severe.
ReplyDelete